Seitenaufrufe: 675 Meine Übungen zielen darauf ab, den gestressten Nerv zu beruhigen, der vermutlich irgendwo der Wirbelsäule entspringt, hinter den Schulterblättern zu den Achseln verläuft und dann durch den Arm bis in die Spitze vom Daumen reicht. Das war jetzt wahrscheinlich vollkommen anatomisch inkorrekt, aber hey, ich bin weder Biologe noch Arzt. Ich schreibe hier kein Lehrbuch.Ich sage nur,...
Seitenaufrufe: 618 Liebes Tagebuch, es ist noch nicht lange her, da habe ich was dazu geschrieben, wie wenig Schmerzen ich im Allgemeinen empfinde. Oder mir diese zumindest nicht anmerken lasse. Ein, zwei Dinge habe ich dabei allerdings unterschlagen. Bei meinem letzten Beitrag zum Thema Schmerzen bin ich nur auf akuten, oder wenn man es so nennen möchte, spontane Schmerzen...
Page views: 874 In the meantime, my physio is pretty much the only time my legs are mobilised. That's not enough. And you can tell. I'm losing my mobility, my muscles are atrophying due to illness anyway, the ligaments and tendons or whatever it is are shortening so much that I can't put my heels up to my bum....
Pageviews: 860 To inhale me in the morning, it's best to prepare everything first because inhalation is really unpleasant and uncomfortable for me. So get the suction catheter ready, fill the Multisonic, get the mask ready to change, if you were planning to clean the nasal mask (which I put on after the inhalation), then it's best to do that now too. With everything I...
Page views: 663 Micro-positioning may not look like much in the end result, but if it is carried out properly and regularly several times a day, it has a whole host of positive effects: Unless I am positioned elsewhere, e.g. because of food intake, it really makes sense to wake myself up every 45-60 minutes, especially to prevent the formation of solid secretions in the throat and lungs.
Page views: 826 For legal reasons, my supplier (Vivisol, see the „Important contacts“ section for contact details) must instruct me on how to use the device. I will limit myself here to the specific application for my particular case. Application As always with work that requires the mask to be removed or opened, good preparation is essential. Lay the tube and mask from the cough assistant on the bed...
Page views: 634 My typical position for the day. With my head on my right side, I get the best air and feel comfortable. It is also the only position in which I can at least talk a little. Ideally, I am positioned with two blankets on the left and right under my bum (see below). The thin 40×80 pillow goes under...
Page views: 601 Dear diary, what's this entry all about? I started it almost a year ago and then left it. It was a response to the following question in an ALS Facebook group. Good morning This disease does not affect me, but a good friend. (...) He can no longer write for himself and has...
Page views: 683 If I could... I would do everything myself. But I can't. Obviously. Otherwise we wouldn't be where we are right now. You wouldn't spend your time reading my confused texts. ? It's all the more important that I put you in a position to get my eye control working again when the system -...
Page views: 546 Positioning my body is a fundamentally important part of my care. Regular and correct positioning significantly reduces the risk of pressure sores, pain and accumulation and retention of secretions in the respiratory tract. Especially at night, I insist that you set an alarm clock and reliably ensure that I move to the other side of the bed at least every 100 minutes.
