Page views: 707 With the first exercise, we have already relieved the affected nerve in the shoulder and back area. The next exercise is aimed more at the neck. Both exercises together bring about a considerable improvement. Ten minutes in the morning is often enough to get me through the day without pain. Firstly, bend my right arm. With...
Pageviews: 697 My exercises are aimed at calming the stressed nerve, which presumably originates somewhere in the spine, runs behind the shoulder blades to the armpits and then extends through the arm to the tip of the thumb. That was probably completely anatomically incorrect, but hey, I'm neither a biologist nor a doctor. I'm not writing a textbook here, I'm just saying....
Page views: 625 Dear diary, not so long ago I wrote something about how little pain I generally feel. Or at least I don't let it show. However, there were one or two things I forgot to mention. In my last post on the subject of pain, I only referred to acute, or if you want to call it that, spontaneous pain...
Page views: 896 In the meantime, my physio is pretty much the only time my legs are mobilised. That's not enough. And you can tell. I'm losing my mobility, my muscles are atrophying due to illness anyway, the ligaments and tendons or whatever it is are shortening so much that I can't put my heels up to my bum....
Pageviews: 878 To inhale me in the morning, it's best to prepare everything first because inhalation is really unpleasant and uncomfortable for me. So get the suction catheter ready, fill the Multisonic, get the mask ready to change, if you were planning to clean the nasal mask (which I put on after the inhalation), then it's best to do that now too. With everything I...
Page views: 688 Micro-positioning may not look like much in the end result, but if it is carried out properly and regularly several times a day, it has a whole host of positive effects: Unless I am positioned elsewhere, e.g. because of food intake, it really makes sense, especially to prevent the formation of solid secretions in the throat and lungs, to wake me up every 45-60 minutes to...
Page views: 851 For legal reasons, my supplier (Vivisol, see the „Important contacts“ section for contact details) must instruct me on how to use the device. I will limit myself here to the specific application for my particular case. Application As always with work that requires the mask to be removed or opened, good preparation is essential. Lay the tube and mask from the cough assistant on the bed...
Page views: 647 My typical position for the day. With my head on my right side, I get the best air and feel comfortable. It is also the only position in which I can at least talk a little. Ideally, I am positioned with two blankets on the left and right under my bum (see below). The thin 40×80 pillow goes under...
Page views: 615 Dear diary, what's this entry all about? I started it almost a year ago and then left it. It was a response to the following question in an ALS Facebook group. Good morning This disease does not affect me, but a good friend. (...) He can no longer write for himself and has...
Page views: 704 If I could... I would do everything myself. But I can't. Obviously. Otherwise we wouldn't be where we are right now. You wouldn't spend your time reading my confused texts. ? It's all the more important that I put you in a position to get my eye control working again when the system -...
