amyotrophelateralsklerose

Multisonic medication nebuliser (inhalation, cold)

Seitenaufrufe: 878 Um mich morgens zu Inhalieren bereitest du am besten erst einmal alles vor, weil die Inhalation für mich wirklich unangenehm und beklemmend ist. Also Absaugkatheter bereitlegen, Multisonic befüllen, Maske zum Wechseln bereitlegen, falls du vorhattest die Nasenmaske (die ich nach der Inhalation aufsetze) zu reinigen, dann tu das am besten auch schon jetzt. Bei allem, was ich...

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Micropositioning torso and back

Page views: 688 Micro-positioning may not look like much in the end result, but if it is carried out properly and regularly several times a day, it has a whole host of positive effects: Unless I am positioned elsewhere, e.g. because of food intake, it really makes sense, especially to prevent the formation of solid secretions in the throat and lungs, to wake me up every 45-60 minutes to...

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Philips/Respironics E70 (cough assistant)

Page views: 851 For legal reasons, my supplier (Vivisol, see the „Important contacts“ section for contact details) must instruct me on how to use the device. I will limit myself here to the specific application for my particular case. Application As always with work that requires the mask to be removed or opened, good preparation is essential. Lay the tube and mask from the cough assistant on the bed...

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Supine with head to the right

Page views: 647 My typical position for the day. With my head on my right side, I get the best air and feel comfortable. It is also the only position in which I can at least talk a little. Ideally, I am positioned with two blankets on the left and right under my bum (see below). The thin 40×80 pillow goes under...

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Tobii Troubleshooting

Page views: 704 If I could... I would do everything myself. But I can't. Obviously. Otherwise we wouldn't be where we are right now. You wouldn't spend your time reading my confused texts. ? It's all the more important that I put you in a position to get my eye control working again when the system -...

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Storage of my body

Page views: 552 Positioning my body is a fundamentally important part of my care. Regular and correct positioning significantly reduces the risk of pressure sores, pain and accumulation and retention of secretions in the respiratory tract. Especially at night, I insist that you set an alarm clock and reliably ensure that I move to the other side of the bed at least every 100 minutes.

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Update: Burning under my nails

Page views: 563 Hi there, my dear diary, today is going to be a good day. At 5 o'clock in the morning there was a little „misunderstanding“, instead of interpreting my mask leakage as a call, a leaky mask was once again suspected. It was tightened without asking. Without asking if everything was OK and without asking if I could still raise the alarm...

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Alexa? Do as I say.

Seitenaufrufe: 704 In meiner Wohnung habe ich relativ viele Hausgeräte vernetzt. Vieles davon lässt sich über Alexa per Sprache steuern. Die wichtigsten Befehle habe ich hier mal zusammengefasst. Die Heizung reguliert sich selbstständig. Die Raumtemperatur ist für jedes Zimmer festgelegt und wird immer konstant gehalten. Öffnet man ein Fenster oder eine Tür, dann schalten sich die Heizkörper automatisch ab....

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Storage of yours truly for laptop work

Page views: 630 How to position me for optimum operation of the eye control: I am lying in the most relaxed position for me, on my back, neck 100% straight and only turned to the right (not bent downwards, which only happens when watching TV and lying on my side!) The bed is slightly raised. I also raised my legs most of the time. The...

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Surface and Tobii, alignment (positioning) of the stand

Page views: 605 Aligning the Surface is actually quite simple. In the status monitor, the eyes must be in the centre with a slight downward tendency. On the right-hand bar, the triangle must be in the upper, just green area. Important: The stand and the holder are never adjusted to position the Surface Tablet. And the infrared camera is perfectly aligned. Please do not...

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