Page views: 912 Dear diary, my warmest Easter greetings. For the readers of my blog, I wish you a belated Happy Easter. I still blur the date and time of my posts to make it impossible for third parties to establish a direct link to a person. And obviously, while I was writing, I thought that these lines were probably written around Easter...
Page views: 656 Dear diary, it's not your fault and you probably care about it about as much as when a sack of rice falls over in China. Or even less. In the same way that a Bayern game captivates me, perhaps? I'm just not interested in football. Never mind, we'll have to get through this together. What is it? Do I pull that...
Page views: 675 Dear diary, this is a really cool thing that I was finally able to set up with the active support of my sister. The hardware has been installed and connected for ages and three days. But setting up the various necessary apps has proved to be a bit tricky on several occasions so far. The current...
Page views: 727 Last time I tried to explain what changes occur to the nerves as a result of ALS. The bottom line is that I can hardly move anything any more - keyword tetraparesis - but I can feel and sense everything as I always have. And also want to feel. My girlfriend gave me a „scratcher“ for my birthday, a telescopic stick fork scratcher...
Page views: 850 Today, for a change, I'm not complaining about my care service or moaning. Quite the opposite. Today I want to tell you something about the real life of an ALS patient. Something you won't find in any textbook. Why doesn't anyone write about such things? Good question. Probably because it doesn't make any money and...
Pageviews: 652 Dear diary, I just can't seem to get it right. Just when you think you've had enough vomit this week... just when you think things are about to change for the better in your care... just when you're thinking about whether changing care provider might not be a wise decision after all... Then it's time for another hearty...
Page views: 642 Dear diary, help me. I don't want to have to lie in my nursing bed again and watch a trickle of blood run from my mouth into my pillow. After all the trouble and stress I've just had because of my bleeding gums, I've had enough for the next few weeks. I already have a toothbrush ban...
Seitenaufrufe: 691 Liiiiebes Tagebuch, schön, dass es dich gibt. Du verstehst mich. Wenn ich dir in einer sachlichen Besprechung widerspreche, du würdest nicht auf deine Meinung bestehen und darauf rumreiten, ohne sie zu hinterfragen. Ich hätte irgendwas vergessen, das höre ich mehrfach täglich. Obwohl die Bilanz 100% auf „Patrick hat nichts vergessen, sondern Pflegerin hat einen Fehler gemacht “...
Pageviews: 632 Dear Diary, To this day, I'm fascinated by the fact that at 43 years old, I'm obviously already part of the age group we used to call „goths“ when I was a kid. Instagram is too much adverts and BS for me. When I talk about Facebook, my carers laugh at me. Who still has Facebook today. And yet another blog....
Page views: 721 Dear diary, it's actually an irony of fate. I never used to have a problem drinking two bottles of water between 15 gin and tonics when doing sport or partying, for example. Or at the Oktoberfest. When I remember that I used to drink ten litres in the best of times, that's unthinkable today. Today that would be...
