Page views: 737 Yay! The next excitement. Dear diary, it would be boring if nothing absurd happened. I'm introducing a new category for this: Patrick's panopticon. Panopticon, an awesome word. A rarely used word, but one of my favourites. Maybe even my favourite, or maybe not, but it is. The Brockhaus says: Panopticon [from the Greek optikós „the...
Page views: 716 Dear diary, it's like being in a madhouse. I recently reported that my carer was once again too stupid to count to 24. To put it another way, whoever opened the last box of my drinkable food didn't tell me. Now you could assume that I was also told...
Page views: 754 Dear diary, I had actually resolved to swear less. And what kind of ideas do I come up with? Yeah, I'm creating a new category called „excitement“. Now that's what I call failing with a bang. But I also have topics on the table all the time that you can only shake your head at. The fact that I have to deal with...
Seitenaufrufe: 760 Mit der ersten Übung haben wir den in Mitleidenschaft gezogen Nerv schonmal im Schulter- und Rückenbereich entlastet. Die nächste Übung zielt mehr auf Hals und Nacken ab. Beide Übungen zusammen bewirken eine erhebliche Verbesserung. Oft reichen schon zehn Minuten am Morgen aus, dass ich schmerzfrei durch den Tag komme. Zunächst winkelst du meinen rechten Arm an. Mit...
Page views: 661 Dear diary, what's this entry all about? I started it almost a year ago and then left it. It was a response to the following question in an ALS Facebook group. Good morning This disease does not affect me, but a good friend. (...) He can no longer write for himself and has...
Page views: 629 Dear diary, a few turbulent days lie behind us. Between Easter week, a family visit and a panic attack, my carer has lost touch with reality and, as a result, two new carers have spontaneously started work. The first one yesterday in the late evening - some would call it „night“ if you don't finish until 1.00 am -...
Page views: 685 Dear diary, but something always has to happen first. Why do I, as the customer that I am at the end of the day, have to show complete apathy for the seriousness of the situation to be recognised? Dogs that bark don't bite. So they say. Anyone who knows me knows that I like to defend my opinion with arguments. Especially when...
Page views: 922 Dear diary, my warmest Easter greetings. For the readers of my blog, I wish you a belated Happy Easter. I still blur the date and time of my posts to make it impossible for third parties to establish a direct link to a person. And obviously, while I was writing, I thought that these lines were probably written around Easter...
Page views: 669 Dear diary, there are some things I don't need to understand. But I would like to. Lately, I've been thinking a lot about my care. Am I expecting too much? Are my expectations too high? If you ask me my opinion on the care crisis in Germany, I'm torn. On the one hand, I'm convinced that the...
Seitenaufrufe: 707 Liebes Tagebuch, es scheint mir einfach nicht vergönnt. Grad, wenn du glaubst, du hast dich genug ausgekotzt diese Woche… wenn du glaubtest, es würde sich was zum Guten wenden in deiner Pflege… wenn du am überlegen bist, ob ein Wechsel des Pflegedienstes vielleicht doch keine kluge Entscheidung ist… Dann ist es mal wieder Zeit für einen deftigen...
