This article is part of a series of contributions.
Yeah. Good question. Not another tube coming out of me and invasively connected to my body. Anyone who told me two or three years ago that I should have had a tracheostomy tube inserted at that time, I sent them packing. Rightly so, in my opinion.
This is similar, actually identical, to my personal assessment of the need for a PEG. It is so far when I say that this is it. It's not that difficult to understand, I thought.
Unfortunately, I am no longer satisfied with my current mask situation. I am a total fan of mask ventilation. But there are many factors that all have to fit. Too many for my taste. As if that wasn't enough of a good thing, there's also a bottleneck, or bottleneck principle, I guess that's what it's called. The weakest component determines the overall result. And unfortunately there are more than enough weak components at the moment.
This is neither an accusation nor a complaint. I am merely explaining what I think are the possible reasons why it has not been possible to change masks for a few days now. I am not saying that I am right about everything. But there are probably only a few ALS patients with more "practical experience" than me - who are also still able to type with their eyes. I therefore hope that one or the other will find themselves here and that my post can contribute to a better understanding. Especially with regard to possible limitations, problems and well, let's call it carefully diplomatic "difficulties".
