Page views: 685 Yay! The next excitement. Dear diary, it would be boring if nothing absurd happened. I'm introducing a new category for this: Patrick's panopticon. Panopticon, an awesome word. A rarely used word, but one of my favourites. Maybe even my favourite, or maybe not, but it is. The Brockhaus says: Panopticon [from the Greek optikós „the...
Page views: 679 Dear diary, it's like being in a madhouse. I recently reported that my carer was once again too stupid to count to 24. To put it another way, whoever opened the last box of my drinkable food didn't tell me. Now you could assume that I was also told...
Page views: 692 Dear diary, I had actually resolved to swear less. And what kind of ideas do I come up with? Yeah, I'm creating a new category called „excitement“. Now that's what I call failing with a bang. But I also have topics on the table all the time that you can only shake your head at. The fact that I have to deal with...
Page views: 687 With the first exercise, we have already relieved the affected nerve in the shoulder and back area. The next exercise is aimed more at the neck. Both exercises together bring about a considerable improvement. Ten minutes in the morning is often enough to get me through the day without pain. Firstly, bend my right arm. With...
Page views: 601 Dear diary, what's this entry all about? I started it almost a year ago and then left it. It was a response to the following question in an ALS Facebook group. Good morning This disease does not affect me, but a good friend. (...) He can no longer write for himself and has...
Page views: 592 Dear diary, a few turbulent days lie behind us. Between Easter week, a family visit and a panic attack, my carer has lost touch with reality and, as a result, two new carers have spontaneously started work. The first one yesterday in the late evening - some would call it „night“ if you don't finish until 1.00 am -...
Page views: 646 Dear diary, But something always has to happen first. Why do I, as the customer that I am at the end of the day, have to show complete apathy for the seriousness of the situation to be recognised? Dogs that bark don't bite. So they say. Anyone who knows me knows that I like to defend my opinion with arguments. Especially when...
Page views: 909 Dear diary, my warmest Easter greetings. For the readers of my blog, I wish you a belated Happy Easter. I still blur the date and time of my posts to make it impossible for third parties to establish a direct link to a person. And obviously, while I was writing, I thought that these lines were probably written around Easter...
Seitenaufrufe: 630 Liebes Tagebuch, es gibt Dinge, die muss ich nicht verstehen. Würde ich aber gerne. In letzter Zeit denke ich notgedrungen viel über meine Pflege nach. Erwarte ich zu viel? Sind meine Ansprüche zu hoch? Wenn du mich nach meiner Meinung zum Pflegenotstand in Deutschland fragst bin ich hin und her gerissen. Einerseits bin ich überzeugt, dass der...
Pageviews: 636 Dear diary, I just can't seem to get it right. Just when you think you've had enough vomit this week... just when you think things are about to change for the better in your care... just when you're wondering whether changing care provider might not be a wise decision after all... Then it's time for another hearty...
