Page views: 697 Yay! The next excitement. Dear diary, it would be boring if nothing absurd happened. I'm introducing a new category for this: Patrick's panopticon. Panopticon, an awesome word. A rarely used word, but one of my favourites. Maybe even my favourite, or maybe not, but it is. The Brockhaus says: Panopticon [from the Greek optikós „the...
Page views: 692 Dear diary, it's like being in a madhouse. I recently reported that my carer was once again too stupid to count to 24. To put it another way, whoever opened the last box of my drinkable food didn't tell me. Now you could assume that I was also told...
Page views: 713 Dear diary, I had actually resolved to swear less. And what kind of ideas do I come up with? Yeah, I'm creating a new category called „excitement“. Now that's what I call failing with a bang. But I also have topics on the table all the time that you can only shake your head at. The fact that I have to deal with...
Page views: 707 With the first exercise, we have already relieved the affected nerve in the shoulder and back area. The next exercise is aimed more at the neck. Both exercises together bring about a considerable improvement. Ten minutes in the morning is often enough to get me through the day without pain. Firstly, bend my right arm. With...
Seitenaufrufe: 615 Liebes Tagebuch, was hat es denn mit diesem Eintrag auf sich? Den habe ich vor einem knappen Jahr begonnen und dann links liegen gelassen. Es war eine Reaktion auf die folgende Fragestellung in einer ALS Facebook Gruppe. Guten Morgen Diese Krankheit betrifft nicht mich, aber einen guten Freund. (…) Er kann nicht mehr selbst schreiben und hat...
Page views: 603 Dear diary, a few turbulent days lie behind us. Between Easter week, a family visit and a panic attack, my carer has lost touch with reality and, as a result, two new carers have spontaneously started work. The first one yesterday in the late evening - some would call it „night“ if you don't finish until 1.00 am -...
Seitenaufrufe: 653 Liebes Tagebuch, es muss aber halt immer erst was passieren. Wieso muss ich eigentlich als Kunde, der ich schlussendlich bin, völlige Teilnahmlosigkeit an den Tag legen, damit der Ernst der Lage erkannt wird? Hunde, die bellen, beißen nicht. So sagt man. Wer mich kennt, der weiß, dass ich gerne mal meine Meinung argumentativ verteidige. Ganz besonders, wenn...
Page views: 912 Dear diary, my warmest Easter greetings. For the readers of my blog, I wish you a belated Happy Easter. I still blur the date and time of my posts to make it impossible for third parties to establish a direct link to a person. And obviously, while I was writing, I thought that these lines were probably written around Easter...
Page views: 641 Dear diary, there are some things I don't need to understand. But I would like to. Lately, I've been thinking a lot about my care. Am I expecting too much? Are my expectations too high? If you ask me my opinion on the care crisis in Germany, I'm torn. On the one hand, I'm convinced that the...
Pageviews: 652 Dear diary, I just can't seem to get it right. Just when you think you've had enough vomit this week... just when you think things are about to change for the better in your care... just when you're thinking about whether changing care provider might not be a wise decision after all... Then it's time for another hearty...
